Death in the Chronic Illness Community

TW: Death Talk

Also to my friends that read this I’m including some things about our friend that passed recently. Just a warning if you aren’t ready for that yet.

Continue reading “Death in the Chronic Illness Community”

We Don’t Owe You A Goddamn Thing

I’ve been contemplating how to write this blog for a few days. Instinctively I find myself wheeling on eggshells over this topic when I really shouldn’t. As disabled people we’re expected to answer everyone’s questions with a smile, always be polite even when people are being rude and offensive and we’re expected to never show any sort of anger or resentment. If we do, we’re labeled as ungrateful.

Continue reading “We Don’t Owe You A Goddamn Thing”

PTSD in Disabled Children

This post may be triggering for those of you who grew up in hospitals like I did.

The phrases in quotes are directly from my childhood medical records.

My diagnosis is actually C-PTSD, which is a more complex version of PTSD, but for this post I have just used the term PTSD to explain things.

Continue reading “PTSD in Disabled Children”

Things Abled People Have Said to Disabled People (Part 2)

Hey ya’ll,

My first Things Abled People Have Said to Disabled People was such a big hit I decided to do it again. So here’s part 2:

Continue reading “Things Abled People Have Said to Disabled People (Part 2)”

The Realities of Chronic Illnesses

As a lot of you know I had rescheduled my MRI for later today. I just had to cancel it again and tell the receptionist I don’t know when I will be able to reschedule it so I will have to call her back. Continue reading “The Realities of Chronic Illnesses”

What is Chiari Malformation?

September is here and so begins fall, and Chiari Malformation Awareness Month. Now if you don’t know anyone with Chiari chances are you’ve never heard of it. But Chiari isn’t rare, not by a long shot. Chiari affects 1/110 people but it’s most commonly found on autopsies.

Here are some commonly unknown things about Chiari Malformation. Continue reading “What is Chiari Malformation?”